End of Treatment!

Jack’s been off treatment for over a month! I’ve been terribly remiss in posting about it here. We took a few pictures, though. The first is his last day of chemotherapy in the clinic. The second marks the last day of oral chemotherapy altogether!

We’ve already seen a big difference in Jack. He is full of so much energy now! He has a huge (it seems to us, anyway) appetite! He’s waking up on his own a lot in the mornings rather than needing to be dragged out of bed. It’s AWESOME!

His Broviac catheter has been removed from his chest, as well. That is both good and bad. Good because we don’t have to go to the ER for a fever anymore and we don’t have to worry about dressing changes! Bad because it means now Jack needs to get blood draws with a needle from now on…

And he is deathly afraid of needles.

We tried to get labs drawn this week and it was a miserable failure. We are now looking at finding a therapist who specializes in EMDR (a therapy used for PTSD) in kids to deal with the trauma issues he has developed. We need to get this done soon and quickly! We can also try a finger prick approach, but I am not convinced that will work any better than a needle in the arm. Even if it does, he needs more therapy – his fears and nightmares (and NIGHT TERRORS) are still terrible.

So, that’s where we’re at with that. We are celebrating the end of treatment tomorrow by hosting a party in Tilden Park. Jack has come up with some cancer-themed games he wants to play and we’ll eat, drink, and toast to the fact that we survived the last 3+ years!!

Fuck cancer, y’all.

To Simpler Days!

This year is trying to get the best of me.

My grandfather has been hospitalized several times and nearly died due to advanced liver disease. At one point he was in a coma and then he was awake and started planning his memorial…then one day he got up, got dressed, and decided since he hadn’t died yet he wanted to go home. We are all shocked as hell that he is doing relatively well now! I have no idea how long that will last, though.

During one of his hospital stays, things got even crazier when my grandmother had a heart attack, coded, and was life flighted to the same hospital my grandfather was at. A stent was placed and she was released a few days later. She looked amazing, all things considered, when I finally made it up to see her and my grandfather.

While those things were happening, we were getting Jack checked out for a fever in the first of three ER visits. That fever went away after the requisite two doses of antibiotics and nothing materialized from it, thankfully.

Not too long after, though, he had an allergic reaction to a breathing treatment he’s been getting for over a year. We marched straight from the Pulmonary department down to the ER and he couldn’t wear a mask because he couldn’t breathe…he recovered before a doctor saw him, though. (He won’t be on those breathing treatments going forward…)

A couple days after that incident Jack started developing a cold – probably something he caught in the freaking ER! He’s been battling it since and a week ago we ended up back in the ER again due to another fever. It’s been over a week now and the fever doesn’t want to let go, although it’s slowly losing its intensity. Jack has been out of school all week (right when we got his IEP in place, too!).

Meanwhile, the company where I’ve worked for the last 7.5 years is being acquired. My position is definitely one of the ones that will go away, but I don’t know exactly when (maybe May?). In the mean time I’m still working when I’m not home with a sick kid. We will be fine, by the way, but it’s still a big change that I have no real control over.

Tomorrow morning I’m taking Dez to see a pediatric neurosurgeon to assess if there’s anything we need to do about his plagiocephaly (probably nothing, but maybe a helmet, unless the universe has something else in store for us).

Also, David is taking a couple of college classes and we refinanced the house and Jack is Boy of the Year for the Leukemia & Lymphoma Society and the end of treatment is this week (!)…

So. I don’t even know what day it is anymore. I’m just chugging along and trying to keep my head above water. I’m looking forward to the end of Jack’s cancer treatment and life getting just a smidge simpler.

Please, let it get simpler.

Save the Date with Minted

Note: This post is sponsored by Minted.

End of treatment is approaching for Jack and we have our eyes on the prize. We’re working on planning a few things in honor of this long, hard journey coming to an end, including a party to celebrate! We’ve have a few talks with Jack about it and so far he knows he wants to eat chicken on a skewer, mashed potatoes, and apple pie.

We’re a little food focused in this family.

He has a vision for making monsters that travel around on little motorized wheels, as well. I am not very mechanically inclined, so I’m going to leave that up to David to figure out! (Tag – you’re it, David!)

I get to work on the menu and invitations, mainly because I’m the mom and I didn’t ask for other volunteers.

This might come as a surprise to the other tech-savvy bloggers out there, but I’m a little bit old school and I LOVE paper. When I heard about the new Save the Dates at Minted, I got super excited. I already have some of their Mommy Calling Cards and the quality of the cardstock and printing can’t be beat; I get compliments on them all the time. So I hopped on over to their site to find something just right for Jack’s End of Treatment Party.

The problem is there are too many awesome choices!

Should we go with a British theme (for the Dr. Who lover)?


Or maybe something that showcases the sheer elation we feel to be DONE?


Or how about something with a photo to show off that handsome face?

PhotoSaveTheDateLuckily I get to play around on the site and personalize the different versions to help me make this decision. I may have to order a few different designs, though…

Disclosure: I received compensation from Minted in exchange for this post, but the content and opinions expressed here are my own. Please see my Disclosures page for more information on my sponsored content.

He’s Here

On September 2, 2014, at 12:43am, we welcomed our new baby Desmond to the world. He measured 19″ and 7 lbs. 1oz. He was born without a single push on my part!

We are madly in love. Jack met him on his first day of life and said, “This is one of the happiest times of my life!”

Our dog Lambert is channeling Lassie and thinks he should come to Dez’s rescue at the the littlest cry. Lambert even leads David to me when Desmond needs to nurse. We keep trying to tell the dog that we have it covered but he clearly doesn’t think we’re very good at this baby thing.

I’m hoping to get the birth story up soon! Stay tuned!

What A Birthday Boy Wants

Note: This is not a sponsored post; however, it does contain affiliate links just for funsies.

Summer birthdays are tough – as I’m sure many of you know. So many of Jack’s friends are out of town on vacation or at summer camp, so we decided to schedule his party for a week after his actual birthday. He was not happy about having so little planned for THE DAY but we tried my best to make it a good day. He got cinnamon rolls and chocolate chip pancakes for breakfast, had a playdate with one friend who was in town and another with his cousin Isha, and we made a trip to Toys R Us (where he picked out a large rubber tarantula and some test tube aliens). It seemed to be a pretty good day to me, but he felt it was lacking – I’m hoping it was just due to pulse of steroids he still had in his system from the prior week.

This Saturday afternoon his birthday party will take place and we have a lot of people coming (way more than I expected)! This year Jack expressed his desire to celebrate his birthday at Rockin’ Jump, a place filled with trampolines and a foam pit. Ordinarily I wouldn’t spend this kind of money on a birthday party, but since my due date is quickly approaching, I decided it would be best to have the party outside of our house. Less cleaning, you know! So Jack gets his wish and will be joined by 14 other kids all jumping to their heart’s content for two hours. And then we will send them all home filled with cake…

One of the ‘perks’ of living with cancer (doesn’t that sound wrong?!) is that Jack qualifies for a free specialty cake through a program called Icing Smiles. Icing Smiles is a collective of bakers who volunteer to provide free specialty birthday cakes for kids facing critical illnesses. Last year he got a dream cake that was shaped like an Ent from Lord of the Rings. It was AMAZING:


This year he won’t get the over-the-top “dream cake” but he will still get something special. A baker located in Fremont (Anything Cakes) is constructing a custom cake that will be shark- or Dr. Who-themed. Jack will be totally happy with either so we are leaving it up to the baker’s discretion. I can’t wait to see what is created! A cake seems like a simple thing to a lot of people but birthdays have a lot more meaning for us these days and it’s awesome that the day can be made extra-special with things like this.

So…what else does an 8-year-old boy like Jack want for his birthday? His interests are definitely unique – he doesn’t like the usual stuff like Pokemon, Yu-Gi-Oh, Transformers, or Minecraft (in fact, he loathes them). Instead he wants things like this:

A “carnivorous rock” plush that he designed and GypsyGarden Etsy shop brought to fruition:rockdrawing

rock plush

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A creepy cymbal-playing monkey:

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Sticky slugs:

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Toys that “eat” things/people, like Clayface:

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And, just to throw us off, the random cute/normalish thing – a plush koala:


He’s also happy to get books and Legos, of course. He can never have too many of those!

I’m hoping Jack’s birthday party this weekend goes well and he has nothing but fun! The steroids will be mostly out of his system so he should be in a better mood overall.

And by this time next year…he should be DONE with chemotherapy altogether and be able to have a cancer-free birthday. WOOT! I know that’s what he REALLY wants!