Hope Versus Belief

It was a bad week. It was somewhat expected – for some reason, bad shit tends to happen surrounding my birthday. Every freaking year (the most famous year being when my brother went to jail and David lost his job).…

Jack Star, A Poem

This is a poem that one of Jack’s friend’s mom emailed to me one morning. We were dealing with his health problems and she wanted to provide some encouragement. I’m sharing it with her permission: For Jack (by Anonymous) Jack…

We Just Don’t Know

Here’s what’s going on in our medical mystery world right now. (Note: I wish I had the brain power to write this more better but I just don’t. I won’t be able to decide if any of this even makes…

Too Many Things

Yesterday involved a lot of things. Too many things, which ended up overwhelming me. These things included: Cleaning up the bloody nose Jack had when he awoke. And then worrying if this was a sign of low platelets (it wasn’t).…