So Many Experts, So Few Explanations

We’ve seen quite a few doctors over the last week to address Jack’s recent paralysis incident and an increase in headaches that don’t want to go away. Two pediatrician visits, one neurology visit, and lots of phone calls have occured.…

Try Not To Worry, She Says

I spoke with Jack’s oncology office yesterday and they let me know that his chemotherapy doses are being increased again. Back when Jack got sick last August, the chemotherapy was stopped altogether until his immune system started to recover somewhat.…

Special Needs Life

Every 6 weeks Jack has an ophthalmology appointment to check on his optic nerve and make sure it hasn’t been damaged by excess cerebrospinal fluid. Every 4 weeks he goes to the oncology clinic for a check-up and chemotherapy infusion.…

Hope Versus Belief

It was a bad week. It was somewhat expected – for some reason, bad shit tends to happen surrounding my birthday. Every freaking year (the most famous year being when my brother went to jail and David lost his job).…

Jack Star, A Poem

This is a poem that one of Jack’s friend’s mom emailed to me one morning. We were dealing with his health problems and she wanted to provide some encouragement. I’m sharing it with her permission: For Jack (by Anonymous) Jack…